Baby Born With Enormous Adult-Sized Tongue Has Life-Changing Surgery

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Little Paisley Morrison-Johnson's rare condition caused her tongue to grow more than twice the size of her mouth - and to continue to grow band hang out of her mouth when it was cut away.

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Paisley Morrison-Johnson was born with an enlarged tongue as a result of a rare overgrowth disorder called Beckwith Wiedemann Syndrome (BWS).

She was born with Beckwith Wiedemann Syndrome (BWS) - a rare overgrowth disorder affecting around 1 in every 14,000 births worldwide.

It caused her tongue to grow more than twice the size of her mouth, which meant she struggled to feed.

She had such a large tongue that she needed help breathing for the first week of her life to stop her from choking to death.

And she had to be fed through a tube in her stomach until she was six months old.

Parents Madison Kienow, 21 and Shannon Morrison-Johnson, 23 agreed to surgery to slice parts of it away.

Before having her reduction surgeries, Ms. Kienow noticed that people would stare at her daughter because of her enlarged tongue - which is one of the main symptoms of BWS and medically known as macroglossia.

She has had two operations to remove large sections of her tongue and is now able to smile and eat. 👏🏻

She has had two operations to remove large sections of her tongue and is now able to smile and eat. 👏🏻
She has had two operations to remove large sections of her tongue and is now able to smile and eat. 👏🏻

Paisley, who is 16 months old, is now enunciating the sounds that will allow her to speak her first words.

Doctors now hope Paisley won't need further surgery and are monitoring for other risks associated to Beckwith Wiedemann syndrome.

Children with the condition have a 7% to 25% chance of her developing cancerous tumors. So Paisley will have ultrasounds and blood tests every three months until she is 8 years old when the risk drops significantly.

She seems like a very happy baby after surgeries and is being well taken care of, so her family and doctors are really confident about her future!

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